Why make a website about Prinzmetal/Syndrome X?
Everyone have a right to get proper information about the disease, which you have been diagnosed with. But since that both Prinzmetal´s Variant Angina and Cardiac Syndrome X are very rare, it´s often very limited what the doctors know about it.
On the internet it is not much easier to find useful information. In most cases it is only possible to find a few lines here and there. Most of my knowledge I've gained from the Danish organization called Foreningen Det Kardiologiske Syndrom X. Here I discovered that it's a very rare disease. And those patients often don't get the correct help/treatment because the system doesn't take them seriously. Often because the doctors don't know very much about this diagnose.
So after some consideration I decided to make a website with Prinzmetal Variant Angina as the main topic. In the beginning it was only meant to be in Danish. But then I had a few requests if it was possible to make the site in English, and that's when I decided to split the website up in two parts.
The website is made with the purpose to gather knowledge about Prinzmetal Variant Angina. I've also chose to have some thing about Cardiac Syndrome X because it very much resembles Prinzmetal Variant Angina.
I have to stress that webmaster don't have an education within the health sector. All information's on this website have been brought from other sources.
Financial circumstances!
There are very few things today that are free and therefore it can't be avoided that there is some working expenses. But I would like to stress that this website is privately funded by webmaster. However, we have received donations from private users and from the Danish association of the Cardiac Syndrome X, which we have close cooperation with. But otherwise we receive no financial support from patients' associations or from the pharmaceutical industry. |
